Update 12/9/11

Well we are at chuck e cheese and Abby and Austin are off playing games so I thought I'd take a moment to update the blog.

Let's see...what's new? Well we got a call last week saying maddie needed a liver biopsy because her liver functions were not improving. So we scheduled the biopsy for the 8th. We already had an ID appointment on the first and were scheduled to get her hearing aids on the 2nd.  They told us she needed an ultrasound and blood drawn before getting the biopsy so we did that on the 1st as well.  Then we got a call on Monday this week with the results of her labs. They said that her liver enzymes had gone back down and her total bilirubin was around 1.5 (I can't remember the exact number).  Because of this, they cancelled the biopsy!  Yeah!  What a blessing!

The ID appointment was just a check up. We told them we had discontinued use of the valganciclovir because we felt there were just not enough studies to prove that cancer wasn't a consequence of long term use. They said that was fine and that we wouldn't need to see them anymore unless we changed our minds.

The hearing aid appointment was great!  We got Maddie's loaner hearing aids which are 2 different colors.  She said that if we wanted the same color, we would have to get a lower model aid. It didn't matter to me because when hers come in, they will be pink!  The hearing aid brand is Phonak and the model is Naida.  I have researched these and apparently they give them back 80 decibels of sound!  Maddie really seems to be responding to them!  The first time we put them in, she just cooed like crazy!  I have been praying daily for God to allow Maddie Kate to hear and what an amazing blessing we have received!