Last week Maddie Kate had two doctor appointments. The first appointment was with infectious disease. We decided in that appointment to continue Madelyn's treatment with ganciclover through 6 months of age. There is an unpublished study that shows possible benefits in reducing developmental delays with prolonged treatment. For now we are continuing the treatment but I do have a few more questions about the drug that I want to discuss at our next doctors treatment. I just want to make sure that there are no serious side effects with long term use of the drug.
The second appointment was for a hearing aid fitting for Maddie Kate. The hearing aids fit around the ear and then have a little mold that fits in the ear. We chose clear molds but a pink hearing aid for her.
She is going to be so stylish! Because TEIS (Tennessee Early Intervention Service) is paying for the hearing aids, it could take several months for them to come in. In the meantime, Vanderbilt will provide loaner hearing aids for Maddie. We will probably have to come back in a couple of weeks once Maddie's molds come in and get the loaner hearing aid. She will then have to have new impressions taken since her ears are growing so fast. In fact she will have to have new impressions taken every time she goes in to get new molds which will be about every 3 - 4 weeks.
Today we have an appointment with the GI doc. I will let you know how that goes later on today hopefully.
3 comments:
I'm so glad she is doing so well! I can't wait to see her again!
Glad the appointments went well! And I agree that the pink will be so cute :)
we need to hang out again soon!!!
So happy to hear that Maddie is doing so well! Thanks for the updates on her progress. Of course, all of you remain in my prayers!
Post a Comment